Please read and pass on to others even those who do not have Lupus you can still write about
friends or loved ones I don't have support from my family well yes I have it from my husband thank God he supports me so much
and loves me.
I am sending this out to all of you, maybe you can take some time and write if you do not know
anyone who has Lupus you can write that you know me share that you have a friend I do not care if you use my name or not I
hate to ask but we need to let more people know about Lupus and support the Lupus foundation, so we can get message out
about how serous Lupus is they make a big deal of cancer and other diseases but they seem to forget about Lupus and this is
a disease that can kill because some of us do not look sick does not mean were healthy some of us are dieing and if you
were to meet us we look healthy. Since I was diagnosed with Lupus in 2004 I have known people online who have died from
Lupus it is serous disease. Young and old alike can get Lupus it can attack anyone at any time male or female yes it seems
to get women more often but even men can get it and it seems that when men get it they tend to get it even more painful.
So
please take this serious and if you can make the time to write please in the link below there is a page to go to and it will
tell you where to write to and you can sign up for the news letter so you can see what we will be doing each week.
Please read below:
We are announcing a Lupus Awareness Media Campaign. We are starting a campaign to try to
get some media attention for Lupus Awareness. Every week we will be picking a Television show, newspaper, magazine or radio
show asking them to do stories/segments on Lupus. We will post our letters and the contact information for the media outlet
we have chosen for that week. We ask all of you to write to these outlets as well.
The more letters they get, the more
serious they will take us and the more likely they are to do the stories. Many of us have written these emails before, but
if we coordinate so that they get hundreds of letters in the same week, maybe they will pay attention! You can write one letter
and save it on your computer and send the same one to each media outlet. Or, you can do what we will be doing and have a basic
letter that you can customize to each show, etc.
New picks will be posted every Friday. To see the picks or have them
emailed to you weekly, visit http://cure4lupus.org/media_campaign.htm
Just to fill you in if anyone uses me as the person you know who has Lupus
I was diagnosed in 2004 at the age of 39 I was in a wheel chair and was not able to walk and
I stopped working in November of 2003 that was when I woke up and could not walk I applied for ssd in November of 2003 did
not have insurance and did not know what was wrong with me from going to doctors to doctors I found out in August of 2004
that I had FMS and Lupus. I fought to get on SSD and in 2006 I was accepted on SSD thank God.
I used to be a dancer, of ballet and Jazz and was very much in shape through
the years the pain got worse and worse and I did not know what was wrong being young and dumb plus not having insurance I
did not go to many doctors so now I am paying for meaning I have Lupus and I don't walk well and always in pain.
Lupus and FMS is affecting me thank God it has not affected my organs Lupus can affect the organs it
just has affected my muscles and joints and causes me to not walk good it has affected my memory and I get infections often,
I live in lots of pain I go to doctors often the last 6 months I been there every few weeks at a different specialist I am
not sending this to you to feel bad for me I am sending this to you to fill you in about what Lupus has done to me. So if
you do choose to write then you will know more about how it has affected me.
I am mainly home bound and I am dealing with it I have my up and down days I don't have many
friends accept for you on line who I communicate with that is why I am sending this to you all.
I am basically saying this so maybe this message will get to some people about what Lupus
can do to people to read more stories of other people who have it way worse then I do go to google search or yahoo search
and type in Lupus personal stories and you will have a bunch of stories that will come up. There are people dieing of this
disease daily children and mothers wife's fathers it is not prejudice it can affect anyone of us. So please I ask maybe I
am asking to much but please read this and write. Every week we will be having another place to write to so please join us
in doing so to support each other.
Thanks hugs Angela aka Angellady
Visit me.
Do you know someone?
My friend Helen also from Angels that Care has great information on her site also.
